"Watershed moment" - Government's commitment to developing a national rare disorders strategy
Davina Zimmer
In June last year the Minister of Health announced a rare disorder strategy, with a list of 7 priorities would finally be developed.
![Chief Executive of Rare Disorders New Zealand](/assets/Davina-Zimmer_Online-News/Rare-Disorders/Screenshot-2023-04-06-at-9__FocusFillWzgwMCw2MDAsIngiLDE4MF0.01.21-AM.png)
![The condition causes blisters like erosions - the equivalent of third degree burns](/assets/Davina-Zimmer_Online-News/Rare-Disorders/1-Janneth-Gil-1867__FocusFillWzgwMCw2MDAsIngiLDUwXQ.jpg)
“Some people didn’t take me seriously, and they just started giving me antibiotics and other people just didn’t believe me that it was something more sinister than a little blister.”
“For many people they feel invisible and lost in the system.”