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Christchurch teen seeks US treatment to fight rare brain cancer

Caitlin Dufty
Sophie CHCH 60
Christchurch teenager Sophie Clibborn is in remission for glioblastoma.  Caitlin Dufty

Christchurch teenager Sophie Clibborn never imagined that just hours after celebrating her high school graduation, she would find herself in hospital fighting for her life. 

Now, after returning from receiving life-saving treatment in the United States, Clibborn is urging the Ministry of Health to bring that treatment to New Zealand. 

On December 6 last year, after months of persistent headaches, the then 17-year-old collapsed on her bathroom floor. Paramedics rushed her to hospital where she was in critical condition. Two days later, she woke from a coma to learn she had undergone emergency surgery to remove a tennis-ball-sized tumour from her brain. 

Six days later, on December 12, she and her family were given the diagnosis. Glioblastoma - an aggressive and often fatal form of brain cancer. 

“I was pretty devastated. I thought my life was over to be honest. I thought I was just gonna die,” Clibborn recalled. 

Even before the biopsy confirmed the worst, she had a sinking feeling.

“I remember looking up brain cancer, and it came up with glioblastoma and I saw the prognosis. I absolutely broke down. Everyone around me was like, ‘no, it’s gonna be benign’, but I just knew it was going to be cancer.”

Her symptoms had started subtly, with headaches initially attributed to a previous run-in with glandular fever.

But one morning after her graduation, the pain became unbearable. She could barely move, could not eat, and even painkillers offered no relief. 

“It wasn't like a normal headache that day, it was worse. It was just a whole feeling in my body.”

When an ambulance arrived, Clibborn felt an overwhelming sense of fear. 

In the ambulance, I kept saying, ‘I feel like I'm dying’. I don't even know how to describe it, but I could feel that I was dying.”

Caitlin Dufty 2025 Sophie Radiation
Sophie Clibborn recieved radiation treatment at St George's Hospital in Christchurch. Sophie Clibborn

However, two months ago, on June 9, she and her family received the devastating news: the cancer was not responding to standard treatment, and doctors only recommended end-of-life care.

“It was the hardest day,” Clibborn said.

“But I wasn’t ready to give up. I knew there had to be another option.”

Refusing to accept death, Clibborn and her parents researched alternative treatments, finding hope in a neurosurgeon at UCLA who performs laser ablation - a procedure not currently available in New Zealand for glioblastoma patients.

Laser ablation uses precision lasers to destroy tumour cells, offering a chance at life for patients like Clibborn.

The surgery offered a rare chance for remission, however the cost was around $200,000. 

Hesitant to ask for help, Clibborn reached out to her social media followers, who flooded her with messages offering support as well as encouraging her to set up a Givealittle page. 

“I wouldn’t have been able to go to the States without my TikTok. The fact I have TikTok has quite literally saved my life,” Clibborn said. 

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Sophie Clibborn with her US based oncology team. Sophie Clibborn

On August 15, she and her family travelled to Los Angeles for life-saving surgery. The procedure successfully destroyed the visible tumour cells, putting her back into remission. However, Clibborn is mindful that being in remission is not the same as being cancer-free. 

“Remission is different from being cancer-free,” she said in a TikTok.  “This surgery gives me hope, but my fight is far from over. I will continue treatments and explore every possible option to keep living.” 

Throughout her journey, Clibborn has remained positive, using her platform as a way to inspire others. 

“Everything I’d seen online about glioblastoma was negative. I didn’t want to fit that mould of what people think a cancer patient looks like. I wanted to show you can still live your life.”

Now back in Christchurch, Clibborn is advocating for greater awareness and access to advanced treatments in New Zealand. 

“I’ve only been offered standard care here and wasn’t informed of other options available overseas. I found them myself, luckily, but I definitely think that should be told to patients here,” she said. 

The Ministry of Health was contacted for comment but was unable to provide a response by deadline.

Clibborn is also open about the life-long reality of glioblastoma. 

“It’s sad that I'm going to live with this for the rest of my life but I genuinely feel like I got given cancer for a reason. 

“It’s the hardest thing I’ve ever been through. But I’m happier now. I’m more grateful, and I enjoy life so much more.”